CONTACT US
Get in Touch
Have questions, want to collaborate, or need resources on cardiac amyloidosis in Africa? We’d love to hear from you.Reach out and let’s move this mission forward, together.
OUR HISTORY
The Best Support
Amyloidosis Africa was founded to address a silent health crisis, the widespread underdiagnosis of cardiac amyloidosis across the continent. Born from a collaboration of leading African cardiologists and supported by organizations like KCS and CRK Clinical Research Key, our journey began with a shared vision: equitable care for every heart.
From awareness campaigns to cross-border research and clinician training, we continue to build a network that empowers patients, providers, and policymakers, offering the support Africa needs, where it’s needed most.
Join Us
Be Part of the Change
Medical Education
We deliver evidence-based medical education to healthcare professionals across Africa to strengthen early diagnosis and improve patient outcomes.
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Clinical Research
We advance Africa-led clinical research to improve understanding, diagnosis, and outcomes of amyloidosis, ensuring African patients are represented in global evidence.
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Pan-African Research Collaboration
We connect researchers and clinicians across Africa to collaborate on amyloidosis research, share data, and strengthen multicenter African-led studies.
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Quality Improvement
We implement quality improvement initiatives to reduce diagnostic delays, improve clinical pathways, and strengthen amyloidosis care within African health systems.
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Advocacy
We advocate for the recognition of amyloidosis as a health priority in Africa, promoting equitable access to diagnosis, care, and policy support.
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Patient Support
We support patients and families by improving access to reliable information, guidance, and navigation throughout the amyloidosis care journey.
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NATIONS
ALL STEPS
Our Commitment Is to Empower Every Patient
At Amyloidosis Africa, we believe that every life deserves a fighting chance, regardless of geography or income. Our work spans the continent to ensure that cardiac amyloidosis is recognized, diagnosed, and treated in time.
We are building bridges between healthcare providers, researchers, and communities, creating lasting change through awareness, training, and access to care.
No one should suffer in silence from a disease that can be detected and managed with the right tools. Together, we’re shifting the future of heart health in Africa.
Support
We provide clinicians and communities with educational tools, awareness resources, and ongoing training to better identify and understand cardiac amyloidosis.
Assistance
We connect patients, families, and healthcare providers with the knowledge and partnerships they need, offering guidance throughout the diagnostic and care journey.
Medical Care
We advocate for access to early testing, accurate diagnosis, and treatment pathways, bridging gaps in care through collaboration across Africa.
RESEARCH OPPORTUNITIES
Join Our Mission
Interested in partnering on studies, co-authoring papers, or joining our pan-African working groups? Fill out the form below and our team will get in touch.
Researchers
64
STUDIES
3
ORGANIZATIONS
6
Become a Member
Free Memmbership
$ 0 / annual
- Access to amyloidosis awareness resources
- Free educational materials and updates
- Invitations to selected webinars and events
- Participation in the Amyloidosis Africa community
- Networking with African clinicians and researchers
- Updates on research, advocacy, and initiatives
- Opportunity to join collaborative discussions
- Open to healthcare professionals, patients, and advocates
OUR IMPACT
CONTINENTAL SUPPORT
1
Raising Awareness
Cardiac amyloidosis remains under-recognized. We drive awareness at the national and local level.
2
Training Clinicians
Workshops and CME programs empower African doctors to detect and manage hATTR-CM effectively.
3
Data-Driven Insights
We support hospital-based research and surveys to map disease burden and care access.
4
Pan-African Research
Continental collaboration helps accelerate trials and produce Africa-led scientific data.
5
Community Advocacy
We equip patients and families with trusted resources for early care-seeking and diagnosis.
6
Policy & Guidelines
We collaborate with health ministries and societies to shape protocols for diagnosis and treatment.
HELP HEARTS
SPREAD AWARENESS
Cardiac amyloidosis is often misdiagnosed or missed entirely. Become a voice in your hospital, city, or community, educate others and help connect lives to life-saving care. Simple actions like sharing resources, organizing talks, or hosting CME sessions create real change.
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AFRICAN-LED IMPACT
Prof. Leonard Ngunga
Cardiac amyloidosis is no longer a rare disease, it’s a rarely diagnosed one. Through Amyloidosis Africa, we are reshaping how Africa detects and manages this hidden epidemic.
Prof. Yasser Hosny
We are building a continent-wide network of cardiologists committed to improving care for patients with amyloidosis. This collaboration is long overdue, and absolutely necessary.
Dr. Anders Barasa
For too long, patients across Africa have died undiagnosed. Amyloidosis Africa exists to change that through clinician education and regional collaboration.
Dr. George Otieno
Recognizing the red flags of amyloidosis early can save lives. We’re empowering frontline healthcare providers with the tools to do just that.
John Dawod
Amyloidosis in Africa is not rare; it is rarely recognized. By raising awareness and strengthening diagnosis, we can change outcomes for thousands of patients who are currently invisible.
CRK Clinical Research Key NGO
Prof. Ngunga
Cardiac amyloidosis remains an underappreciated cause of heart failure in Africa. Improving clinical suspicion and access to diagnosis is essential to advancing cardiovascular care on the continent.
Kenya Cardiac Societ President
Dr. Nyamuzangura
In many African countries, amyloidosis is diagnosed too late or not at all. Regional collaboration and education are key to closing this critical gap in cardiac care.
Burundi Cardiac Society President
Prof. Yasser Hosny
Amyloidosis is a global disease with a significant but overlooked presence in Africa. Early recognition and structured diagnostic pathways can dramatically improve patient survival and quality of life.
Professor of Cardiology, Egypt
Dr. Nyamuzangura
In many African countries, amyloidosis is diagnosed too late or not at all. Regional collaboration and education are key to closing this critical gap in cardiac care.
Burundi Cardiac Society President
Dr. Anders Barasa
Cardiac amyloidosis is an important but often overlooked cause of heart failure in Africa. Strengthening clinician awareness and diagnostic pathways will allow us to identify patients earlier and deliver more effective care.
Heart Failure Specialist, Kenya
OUR ANGELS
Our Main sponsors
You give but little when you give of your possessions. It is when you give of yourself that you truly give.
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READ MOREOur Contact
Address : Nairobi, Kenya
Email : contact@amyloidosisafrica.org
Timing : 09 am to 10 pm
We advance cardiac amyloidosis care across Africa through collaboration, training, and research. Join us to change the future of heart health and empower local clinicians with knowledge and tools.
- Support cardiac care in Africa
- Give what you can to help
- Join our research network!
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